Huntington’s Drama


I am Amy. I have Huntington’s chorea but that is probably the reason I am bipolar. Okay, now that you have some background…

My dad, case manager, and I are putting me in a nursing home or something like that. Yes, I am 33, but my body is not. My body is shutting down, but mainly the problem is the fact that my dementia is advancing, and unfortunately I still have enough of a mind to know I am losing my mind.

I need to begin preparing my medical proxy, Living will, etc before I am found unable to sign them. Because yes, this disease will kill me in one way or another.

I admit I am miserable. it’s taking way too long to even to this blog post. Just being awake is exhausting but tomorrow should be a little easier I hope.

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